Autism: our journey, a small success story

23 replies, Page 1

monarahul 2014-12-13 16:09:47

 

I would like to share some positive things we have experienced in getting over mild or moderate autism in our son....we have seen improvement in the course of last 1 and half years, my son now around 5 yrs. of course u need to consult your Dr. For guidance with various treatments, supplements and therapies.
1. Biomedical intervention or supplements: Multivitamins, multi mineral supplements, especially Magnesium-Vitamin B6, B vitamins, carnosine, carnitine and Co-q 10. The last three were given by Dr. After doing certain tests.. Also omega- 3 fatty acids and probiotics.
2. OT, special education and speech therapy
3. Integration in school where he has been in normal and special class for half- half time
3. Socialization in contrast to the isolated life we had in the States
4. Unknown but useful factors in India...
Ofcourse the journey is challenging however now we have much more hopes and trust that he will be someone one day....

sks2 2014-12-13 20:42:19

 

You have written Dr. and not given doctor's name. Pl.. tell the name, qualification and contact details so that we can also consult and get benefited.
Thanks.
SK Sharma
Mumbai.
 

monarahul 2014-12-14 10:19:59

 

it is Dr. Chaitanya Datar, SMGTEF, near Jangli Maharaj mandir, Pune. they have a website so pl get the details from the site...

 

monarahul 2014-12-14 10:30:41

 

http://neogenlabs.com/experts.php?cstate=Maharashtra
here u will find their address and details. Will check if phone no. is changed...

 


monarahul 2014-12-14 10:35:24

 

Dr. Datar checked for metabolic disorders, and to correct those, he gave the above 3 supplements, which I report to be very useful..

 

monarahul 2014-12-14 10:50:19

 

I didn't write the Drs name right away as I am not in any way advertising anyone... I would expect that everyone is polite here in asking though..

 

ayush17 2014-12-15 09:10:11

 

Hi monarahul, I m curious to know the details of positive changes that occurred in ur child' life.. thanx
 

siddhardha 2014-12-15 12:22:52

 

Please let us know the improvements.
1# Is he verbal now ?
2# How is his eye contact or socialization ?
etc etc...

Thanks,
Sid.







 


monarahul 2014-12-15 12:51:06

 

Yes, he is verbal now. Earlier till 6 months ago he was talking in words, that too inconsistently. But now he uses 3, 4, 5 word sentences. Occasionally he says 3, 4 sent in one go. Recites nursery rhymes. Socialization and eye contact has improved.
 

arshu786 2014-12-15 13:13:12

 

Hi manohar, Good knw abut importantment in ur son. Do u following gfcf diet. My son is 2.10 yrs old. He is also speak in words bt whn it comes in sentence he cant. Pls guide us hw u encourage to spk in sentence. Regrds Rabia
 

hossain1 2014-12-15 19:14:30

 

monarahul
Hi, Are you from Pune too. You mentioned Integration in school where your child has been in normal and special class for half- half time. Can you guide me as to which school is he in in Pune and your personal experience with that particular school. Also my son is 3 years old and goes to a nearby nursery, but he is on his own most of the time and does not participate in class and I am confused as to what to do next school wise.
Thanks.
 

monarahul 2014-12-15 22:01:55

 

Hi ! Yes he was on gfcf diet for 1.5 yr. Now he eats yoghurt...
 

monarahul 2014-12-15 22:04:37

 

Kid zee karve nagar branch. They have a special batch there.. Since my son was able to speak a lil bit, we requested this integration. Thanks to the principal... 
 

vans1234 2014-12-16 00:34:10

 

hey mona

why you followed gluten free diet  ?was he diagnosed with celiac ?

what kind of metabolical disorders you are talking about ? he wasn't able to put on weight or what ?

pls throw some light as I know someone who might get help from this info

thanks



 

Bujju0611 2014-12-16 05:25:13

 

Hi Monarahul,

Kudos to your son and whole family to reach this milestone. As parents, we all know how you feel awesome. Thanks for sharing.

Would you please elaborate on (dosage, brand, when were you giving those - like before/after food or morning/bedtime and if you have addl info) multivitamins, mineral supplements, B vitamins, coq10 and especially on aminoacids (carnosine, carnitine). Everyone follows biomed some or other way, but when and how we give the supplements also considerable. That is why I ask you, to understand whether we are in same pace. (pls don’t worry, none of the parents going to follow the biomed regime without doctor’s recommendation). Which all tests does the doctor asked for finding the deficiencies and so he prescribed these aminoacids out of a bunch (metabolic disorders test ??), can you specify the name of the tests.  It will be helpful for us to aware and propose with our doctor if needed.

It would be great help for parents who are away from India or having kids of same age and symptoms.  

Thanks.





 

monarahul 2014-12-16 10:09:46

 

Please send me your email ids so I can reply you privately, and answer each qs. Houssain, bujjo611, pl send me your emails.
Regarding gfcf, Vans 1234, there is a whole discussion on the internet which you can read, why it benefits autistic children. Of course its a choice.. So In cannot answer it here..
 

Bujju0611 2014-12-16 11:06:51

 

Hi monarahul,
I have sent u friend request, could u pls accept so tht I will send my mailid. Or u can mail me in the parentree mailbox itself once u accept.Thanks.
 

monarahul 2014-12-16 13:01:07

 

done.. now u have to accept the request..
 

monarahul 2014-12-16 20:45:34

 

Hello bujjo, 
As I have mentioned above we consulted Dr. Datar who did some metabolic panel tests and based on those results gave the supplements. if u r in Pune u can visit him..We found major change after the supplements. we have also stopped giving him sugar and trying to follow gfcf..send me a message as I am new to parentrre. if needed I cna give u my phone no.
 

Bujju0611 2014-12-16 21:21:00

 

Hi Mona,

I may not consult the same doctor as we are not in Pune. I sent you a message from parentree, pls check. Thanks.


 


monarahul 2014-12-17 13:09:43

 

There was some discussion abt list of DAN Drs in India, so Usha/priya please find out who is there in Bangalore or nearby area.
 

Nihari 2015-01-09 14:46:45

 

Nice to know that Mona Rahul


 

monarahul 2015-01-12 10:45:31

 

you are welcome
 

Hope4All 2016-07-21 22:55:18

 

Hi MonaRahul,
Hope your son is doing well. Your story is very inspiring. We plan to consult Dr Chaitanya Datar. Before that wanted to check with you and take your opinion. Can you please share your email id or phone number.
Thanks & Regards,



 

 

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