Autism : Return to India Vs stay in the USA

230 replies, Page 7

qass 2018-02-09 00:59:58

 

1) Why do you say it is difficult to get admission in US? Arent all schools in USA inclusive? One of the reasons for considering move to USA is because I feel the school will be better for him there.
All schools are inclusive. But classrooms arent. 

2) your question on getting another opportunity later on is so true. Makes me revisit my decision points. I have been earlier in USA (as a bachelor & not knowing anything abt ASD then) & reason for me coming back was being fed up of the monotonous life there. I need ppl around.
Being Monotonous is part and parcel of US life. If you got fed up of it previosuly, it will happen again.

I think you mentioned you have the kids grand parents around and are active. If they are active and can engage with the kid, it is huge and you and the kids will miss it. I have seen all the other responses and your comments. 

I am the person (thepinkdad) who started this thread and have been contemplating on this topic for years and I have a strong feeling you should stay in india with your kid and continue working on him. Just my humble opinion. 
 

Rami123 2018-02-09 02:58:27

 

Hi Maggy

For my son they diagonised with autism so recommended ABA. But ABA has few parts of speech like intraverbals like fish swims in the water and sentences with pictures depicting difference between in on between etc and another one was understanding a feature like touch the one that flies in the sky and he would have to touch aeroplane pic in the given set of 3 pictures. 

The therapists also also helped him phrase his sentences if he didn€™t know to like they would say to the kid you can say I feel bored and my son would say I feel bored so it€™s not too much into speech but they did touch speech too. Other things were like they would work on his tantrums and modeling his behaviors. 

I did take him to speech therapy once a week for half an hour when he was 2.5 years old but felt it did not help much as the homework for parents is only more and they didn€™t do much  so stopped it. 

Dont know now where the inbox option is so will figure it out and send you message. 
 

Maggy2018 2018-02-09 07:33:10

 

Hi Rami,
i sent you an email could you please check and let me know you got it or not, it's under account tab 


thanks
Maggy
 


abcd0 2018-02-09 11:14:34

 

@qass Are you now in India? What's the point of inclusive school if class rooms are not inclusive? Yes, grand parents will be missed. The advantage im thinking is better therapy, option to get ABA and good school. Plz plz correct me if I'm wrong on this. I'm now confused with the school system. What I want to setup is 1) normal classroom school where he is with regular kids as well. 2) ot therapy class 3) speech therapy class 4) ABA 5) parks play area in evenings Is this not how you all are doing it?
 

habibmuhammad 2018-02-09 12:09:25

 

Hai Maggy 2018, Do u found some info about autismweb and do you any parents (like fatherof2 ,nikkie111) ,email ID. How is your kid doing? What supplement r u following from advice of autismweb. I really miss autismweb.com.
 

Maggy2018 2018-02-09 17:40:58

 

Hi Habib, even we have no idea what happened to autismweb,I was a big follower of Father of2 and I don't have his email I'd if you have it please share

thanks
maggy

 

abcd0 2018-02-09 19:18:55

 

What is autismweb? Was it a forum? Any parent in Chicago or around in Illinois? Want to know info on school districts, therapy centers, insurance coverage, communities, etc.
 


 Former member 2018-02-09 19:24:25

 

I am trying to answer you question.  Below information is based on North Carolina state law. Each states may have different law. 
1)  normal classroom school where he is with regular kids as well.
Ur kid is eligible for school IEP from 3 years ( he should have turned 3 by Aug 31st ) which is special education service provided by school. Your kid may get 1 or 2 days class based on his need. And only ST and OT is part of it. That too, OT is not provided for all kid, services are provided based on need only, not what we want. Eg., 30 mins speech Therapy per day in school.  And , to get into normal classroom which is bright beginnings program, ur kids should have turned 4 years before aug 31st.  So u have to wait till he turns 4 years to go to normal school. Other option is, you can get him into private school ( normal school ) from now. 
2) ot therapy class - It is not provided for all kids. U can hire private OT therapist to come to your home. 
3) speech therapy class - this is provided in school. U also can hire privately therapist. 
4) ABA  - this has long wait time. Min 4 to 6 month, may take more than that. 
5) parks play area in evenings - yes, but. Depend on weather. What I know is, Chicago climate is that good. Please check with your friends who stay there.


 

 Former member 2018-02-09 19:26:10

 

Typo above please read as €œChicago climate is NOT that good€
 

Maggy2018 2018-02-09 21:55:11

 

Hi chialse,
Which part of NC you are living in?we live in NC too,is your son going to Special school here?how is your experience with public school?
My son recently qualified for Special public school but you are not sending him yet, we are sending him to 3 days ABA and 2 days regular daycare

Thanks

Maggy


 

qass 2018-02-09 23:29:50

 

@qass Are you now in India?
No I am in the US. We got my daughters diagnosis after we settled here.We might return, maybe we will not.   
What's the point of inclusive school if class rooms are not inclusive?
There isnt. Thats my point. It depends on your kids ability, based on that he might get placed in an inclusive classroom, or in an intensive care 'autism' class. IF you already have a inclusive classroom admission, thats the best in short term for him. You can always revisit the decision 2 yrs down. Nothing is set in stone.
Yes, grand parents will be missed.
- IF grand parents have awareness and interact with him in the right way, guide hisinteraction with friends and family like he was a normal boy, imho, its many times better than aba sitting in a room alone with a therapist. 

The advantage im thinking is better therapy, option to get ABA and good school.
-"Good School" take it with a pinch of salt. If your kid is in an autism class, the rest of the school doesn't really matter. My kid is an a great school in an autism class. This is my opinion.

Plz plz correct me if I'm wrong on this. I'm now confused with the school system. What I want to setup is
1) normal classroom school where he is with regular kids as well.
-- Yes this might happen, but Depending on a combination of things , 1-Kids ability, 2-School district attitude,availability, how much energy you have to fight. School districts get more money for budget per kid in an autism class than in a regular class. So there will be a subtle push.   
2) ot therapy class
-  Honestly, there isnt anything Too special one can do in terms of OT that you cant do in India. My sister has a special needs kid in Delhi and her OT center is way more advanced than my daughter's in San francisco bay area,  This need not be a factor at all in such a major decision.
3) speech therapy class  - ST is important, but there is very little difference in terms of ST between india and US. Remember unlike, ABA, speech therapy gets approved only for 1 or 2 hours per week. Because they say, "ST happens at home" and parents are expected to follow the direction and practice at home with the kid. This you can do in india itself. IF the kid has cousins , family members, neighbours, who will not give up in trying to communicate with the kid,that is the best ST any kid can get.   Also remember ST in US is goign to be in English, most likely with someone with an American accent.
4) ABA - I agree on this, ABA therapists are better trained in US and have a more structured approach. But remember  ABA is mostly 1:1 in a room alone. It has its unique benefits, but its not everything. 
 5) parks play area in evenings Is this not how you all are doing it? - Thats a positive here. There will be multiple nice parks to choose from wherever you go. The interaction between kids will be minimal unlike in india. And you are in Chicago its going to be super cold most times of the year, but kids get used to it. And there will be other indoor paid playgrounds you can choose from. IF your apartment complex or residential area has acccess to a nice park or beach or street where kids play together and will include him, that's the best. 

I don't mean to sound all pessimistic. There are LOT of positive things about life here too, but when it comes to to 1-Indian, 2-Young (0-6Yrs), 3-Special Needs kids, my suggestion is India. But be observant and see if something is not working out , as you seem to be in a career wise comfortable position so you can revisit the decision to move to US anytime. All the best. 
 


 Former member 2018-02-10 05:18:41

 

@Maggi2018,
i live in Charlotte. Yes. My son got into 2 days School IEP. It is really good. You should try that. It has wonderful class room settings. Our ABA therapist can also go there n do therapy at school.  I am also sending him to 2 Days  private school which is just half day, where he gets chance to interact with NT kids. 
 

 Former member 2018-02-10 05:24:04

 

@qass, well explained. I have a question. Do u specifically look for BCBA certified ABA therapist. Because, what I got for my son is still on Training, where BCBA cerifited therapist comes one or two times per month to guide her ( basically she gives program plan to the other person ) . Is it the same way they follow everywhere ?
 

Maggy2018 2018-02-10 05:27:23

 

Hey chialse

we live in Charlotte too,which part of Charlotte you guys live in


 

GilBaki 2018-02-10 05:41:36

 

chialse , 

  
yes bcba certified therapist supervise their team members (care team members). team members are the ones who interact with the kid. They have goals and this board certified behavioral analyst comes once in a week and monitor , guide and alter the goals. this care team member can be a psychologist , who are undergoin psychology ,or someone who have little experience with special needs , school assistants etc. 
 

 Former member 2018-02-10 06:18:25

 

@GilBaki,

Thank you for confirming. I was just worried about this.
 

 Former member 2018-02-10 06:18:51

 

@Maggy2018, I will inbox you 
 

Maggy2018 2018-02-10 07:31:55

 

Sure
 

abcd0 2018-02-10 22:39:35

 

Thank you everyone for responding with so much detail.

After all these inputs, though I have got more info, I'm still not convinced on my decision to move.

1) My kid is very active & needs as much of OT as possible. If I have challenges with getting OT, the problem could lead to other issues.
2) Speech therapy is very important for me as he is at a crucial stage. Only this month I'm seeing words coming out though not clear. Making changes shouldnt impact him.
3) ABA - From what I hear this seems to be super beneficial if done the right way. I was wondering if in India what is the outcome of ASD person when he/she is in teens or grows into an adult? I'm not able to find and relate to this info... Reason for asking this is that I have a vague feeling that the ABA is naturally done in india due to the society setup and the chalta hai attitude which eventually the kid learns as he/she grows up.

Also, my visa will allow me only 3 year to stay. At present i'm not in the GC journey hence, eventually i feel I have to return & at max it may be 3 yrs if not earlier. For me to make this move and setup everything  and then to make the move back, makes me wonder is it worth it. When my son returns back he may have more trouble adjusting to the school here based on the assisted schooling he may have received in USA during the period. This may make it more difficult for him to settle down. I dont think anyone can answer this question with clarity, but do share your views.

Is there anyone here who has taken therapy in India in any metro/capital city for a period of a minimum of 5-6 months and then moved to USA? or the vice versa, anyone who has had a kid of 3-5 yrs in the USA on therapy services and then moved to India and taken therapy in a capital city? If someone can give this comparison, it will really help me out with my decision.

At this stage i want to use only the therapy as a comparison and not the alternative methods of cure. I have very little knowledge on the alternative methods and i'm not sure if that is going to help me make my decision as they are not conclusive.
 

Carlo 2018-02-11 00:56:28

 

Hi All,

I am sharing this as you all can get the benefit we got when we went for this when our kid was 2 years old and was diagnosed with ASD, apart from doing the therapies back then, which we didn€™t find of great help, we started our son on a diet called GAPS diet by Dr. Natasha Campbell, that changed the whole game for us, we could see our kid improving drastically and the more we went deeper into it the better he was responding. Now he is 4 year old, can read, right and talk normally, doest shake his head anymore or go round in circles or does not give you any empty expressions, knows now how to reason things, talk logically and he is now just a normal smart boy ! And we owe that to GAPS diet.
If you guys need anymore help regarding this,  pleas email me at salmanmus @icloud.com .



 

Maggy2018 2018-02-11 09:32:16

 

Hi Carlo,
That's really great to hear about your son,did you do bio medical with diet,what else did you do to see the improvement in your son

Is rice allowed in the GAps diet and where did you follow the recipes to cook food

TIA
 

 Former member 2018-02-14 08:33:06

 

This is the dilemma right now, is there anyone who has experienced both in India and USA? I am eager to know how good the facilities are now in cities like Bangalore?
 

ali123 2018-02-16 08:35:42

 

Just to let you guys know, Fatherof2 started a new autismweb, its autismweb2.com 
http://www.autismweb2.com/forum/index.php?sid=3e25f4674514308fe2a566dfdb1315e1
I have no idea what happened to the original
 

Maggy2018 2018-02-16 08:55:25

 

Thanks a lot for sharing this info I am a big fan of Father of2


 

UncleDavy 2018-03-03 08:20:11

 

I am also in the same boat as you. I am contemplating moving closer to India (job wise). My wife moved back long time ago. Since I am also job dependent, being closer to India would definitely help financially. Some years back, I spent two years in India looking for a job. Got the feeling no one wanted an experienced IT (networking) guy. I bet they can get multiple refreshers for 6000 a month.
 

aardee500 2018-03-30 04:14:22

 

Hello All ,

Thank you for the valuable infomation . My son is diagnozed ASD since 3 years . He is 4 years now. He is shown moderate progress with ABA and school. 

Back of my mind , its always been that his lack of social interaction is impending his progress. I am planning to take him for 2 months to india for summer vacation . Did anyone did this and seen any difference . He will be going to india for the first time .

I have to get visa stamped and all so there is some risk of disruption . Looking to some guidance . 

thanks ,

P
 

Minnie28 2018-04-20 22:03:42

 

Hello all, 
       Anybody in new jersey area? Anyone has experience of aba from The Uncommon Thread?
my son is in full day school program. I am also thinking to have aba for him from The Uncommon Thread. Please let me know if u have anys reviews for uncommon thread
 

myspecialkid 2018-04-25 07:18:13

 

Hi,
Can you please add my number +1-510-556-6568 ? am desperately in need of some advice 
 

prathibaprabhu 2018-06-20 04:52:52

 

Hi,

Have you attended son rise program in US? How he is progressing?

we live in Australia. My son is 8 years old now. We diagnosed Autism at 2.5 years.Since then we have been doing ABA , Bio medical and GFCF diet. He learned few skills in ABA but still has speech delay. So planning to do Son rise Program. Kindly let me know your advise.
 

Minnie28 2018-06-27 01:23:26

 

What kind of biomedical stuff u are doing? I too want to do it.
 

 

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