Autism : Return to India Vs stay in the USA

246 replies, Page 4

zumbaleena 2017-07-25 01:12:22

 

very very interesting situation for you. 34 months means he is nearly 3 years old. Kids this age have a fairly developed vocabulary. But your son seems to be doing well. International school + going to therapist in mumbai - clever decision.

I would keep all the biomed diets going. I would find out lots more about the intervention available in the US district you are moving to.
 

sb83 2017-07-25 03:20:38

 

Thank you @Zumbaleena for the suggestion. 

Regarding speech, my son has gained from being non verbal to speaking 3-4 word sentences in 4 months with Biomeds, social interaction and therapies. He has almost everything setup in Mumbai with my family support and that is why I am reluctant to move to the US.

The only point that I think has upper hand is the therapies provided in the US and also in the schools from age of 3. I am still thinking what is right decision, to move to the US or not to.

Thank you!
 

abcd0 2017-07-25 22:42:02

 

Thanks for detailed info. I got the assessment done in India and doc said PDD. Starting OT soon and then following it with ST. Have an opportunity to move to Usa. Planning to move alone and then see after 2 months. Anyway to get appointment with out son being in USA? And time his entry into usa just before the assessment? Sounds impossible but still want to check. I want to ensure he doesn't loose out on therapy just due to the move to US and the delay in getting appointment to start therapy... Still don't know what exactly would be done in therapy here in India and if it will be useful... So many iffs and buts..so confused..
 


hope57 2017-07-26 00:49:50

 

Is it easy to maintain biomed diet in India? Where can we find gfcf products? My kind is fond of milk and we don't know how to get away from it
 

zumbaleena 2017-07-26 03:00:12

 

yes I think gfcfsf is easy. make almond milk at home or buy from Nature's basket
 

hope57 2017-07-26 07:40:21

 

@GilBaki

Is it possible to get some therapies started with out waiting for assessment to be done? Like can we approach some therapists with out any recommendation from psychiatrists?
 

abcd0 2017-07-26 10:10:07

 

The development pediatrician and the child psychiatrist said to avoid processed foods and that there is conclusive evidence that they affect asd. But he said not to avoid diary products. When I asked abt gluten I was told you can avoid and see if it helps but there is no conclusive way to say it would help. Is there a way to check and test if stopping milk products would help? At present have stopped wheat based products but there are times when a biscuit or 2 sneaks in.. Plz excuse if the line breaks don't appear as I'm typing from a phone. My previous reply the line breaks got removed and everything is like a single para..
 


Mouri 2017-07-26 11:12:59

 

Hi, Few months before, I was in a dilemma that should I stay back in India or go to US. U all gave ur valuable inputs...I joined many FB groups like "desi biomed", "recovering kids", "northern special education parent leaders group", "warriors mom and dad" etc...these are very informative groups...I spoke with few admins and others who r there in US for the past 20-25 yrs and having asd kids and few r in the special education field too. I saw many posts in the groups. The situation is not much better than us is what I feel. US is now totally overloaded with asd and other special needs children. Schools r overtly crowded with them. Additionally, one may be exposed to racial biases. Spoke with someone who is now a university counsellor and she is Caucasian, married to an Indian. Her children look indian, and she told us that they were the victims of racism. She has a soecial child. She suggested to look for states/provinces with very high Indian population. Though the therapies r good but one should think about the social exposure as well. My son was diagnosed when he was 2 and after that I started all the therapies here. He just turned 10 this month. He goes to a normal school without help. Age appropriate academics, started going to classes alone like yoga, drums, tabla and tennis. He is a bit introverted and has mild attention issues...that's what others feel about him. I get plenty of children in my society to play with him. Just to give him a social exposure we tried many things and which I feel is easy in india. My husband comes back from work, takes him down to the park and play cricket. Many children of similar age group join in and a cricket group has been formed. They also learn from his father. Somedays, when his father cannot go down, atleast 8 to 10 children come to my house and play with my son. He is so comfortable that he also goes alone to play with them. Then obviously u have ur relatives and parents as further support. He seems to be coming out of his shell and becoming more confident. After so much thinking, decided to stay back in India. After all this is our country, our people and we can afford many things which we can't afford there. My son goes to many classes here. Then cook, maid's, nanny all r much affordable. Even I feel the therapies r getting better now. People r much aware than before. I also joined and finished my course to help my son. Then there is the added availability of organic food. Most of the sites I mentioned above talk about organic food that reduces inflammatory tendencies. These are available in India in abundance (millet, cold pressed coconut oil, mushroom, etc). So somehow I feel staying back here where u surrounded with ur own people seems to be a better option than having to go to a new place, where u r not sure about the support system and have to start everything from beginning. Moreover, parents and most importantly the child will need time to adjust and settle down...My two cents...hope it's useful in helping you make a choice...Regards...
 

duggi 2017-07-27 04:30:11

 

Hi everyone i have recently joined this group and trust me half of my answer is here by reading everybody's post. I have a quick question. does anybody knows about MB12 shots? is it available in India?
 

abcd0 2017-07-27 07:22:30

 

@mouri Thanks for the inputs. Can you elaborate on the course you mention and the organic foods and the where you procure from? Is it possible to start OT immediately after moving to Usa in anyway by self pay or any other means? Worried that if I move my son will miss out on OT for a long duration.
 

Mouri 2017-07-27 08:59:51

 

Hi abcd0, There are plenty of course which u can do. I did diploma in special education. You can do diploma in autism also and OT also there is a course. I didn't do autism course bcoz I don't believe in structuring everything. From the beginning he was very high functioning. His grasping in new things were good. So I always focused on his extra curricular activity. Even I have seen OT few months and felt I can do it through sports. So I started , playing ball throwing and catching, yoga, jogging, swimming, tennis , jungle gym ( monkey bar and all), cricket with him when he was 4 years old. These sports make him aware of the direction, balancing etc. Yoga and pranyam helps a lot to calm him down. I donno what is ur child age, but 1 thing I will suggest stop giving them vaccine, I didn't know so till 4 yrs I gave, then got a naturopath and things r started changing. I stopped giving him milk and packaged food, totally stopped eating outside. Started only seasonal fruits and vegetables. His immunity started increasing. I will request everyone to get a good homepathy doctor not like dr. Batra and all( who r very business minded). It works tremendously. My son's speech improved a lot through homeopathy and immunity. From past 1 and half year we didn't visit any doctor for him and for us as well. One thing this naturopathy and homeopathy say that everything related with gut. So u focused on ur child's bowel movement, it should be regular. And the organic stuff, everything for them has to be very clean and toxic and pesticide free. Give organic fruits and vegetables.whatever groups I mentioned in my last post there people researched a lot and all r giving their children kind of food which we indians use. Like black seed (kalonji), turmeric, cold pressed coconut oil, jaggery instead of sugar, all type of fermented food like dosa, idly, yogurt, then for minerals himalayan salt or ocean sea salt instead of normal salt, and vegetables like broccoli, mushroom, papaya, tomatoes, berries, spinach as anti inflammatory food. If u r non vegeterian use country eggs and chicken. Include these in ur diet. You do ur own research and try to join those groups in FB. All are closed group. And 1 more thing, though in that group everyone is giving supplements as our children has deficiency. But I don't give any supplement to him as I feel natural way is the best way. And all supplements content some kind of animal protein in it. Somehow started believeing that old way is the best way. How our grandparents were living and every problem had one natural solution. Change ur lifestyle as much as u can. And limit the gadget time and make ur child tired through outside sports and activities. Hope this will help.
 

hope57 2017-07-27 09:54:56

 

@mouri Can you suggest us a good homeopathy doctor in treating autism in India?
 

abcd0 2017-07-27 15:36:54

 

Hi Mouri. Thanks again for the details. My son is 2.1 yrs. Just got diagnosed as moderate. I'm new to all this and digesting all this info is taking time. In my case, response to name call, speech, non verbal communication, social interaction, focussed attention are the main issues. Balancing, scribling, jumping, running are normal. Plays well with ball as well. Wanted to start swimming or skating but felt it is too early at least in India and might end up hurting himself or get into danger. Don't have typical repeated actions as well. Sometimes claps in self appreciation. Not yet sure on what exactly takes place in OT. But realized individual time is what is required. With all this contemplating a move to USA. That's where I'm really confused.. Typing from phone, plz excuse if line breaks disappear.
 

GilBaki 2017-07-27 18:45:10

 

Most of the parents including me thought its speech and socializing issue so running after therapy to fix it... but most of the kids have underlying physical problem which needs to be addressed for the therapy to work well... which i realized later point of time... best way is to stay connected with parents in groups Mouri mentioned , from their experience we can understand lot of physical problems... 

Most of the doctors in US dont address these issues as there's no proof for it.. we need to find the right doctor, like MAPS , pay out of pocket , and find the right treatment for our kids... there's also homeopathy available in some US states , after intial visit they do treatment in skype and phone calls.... ayurvedha is available in california... 
 

abcd0 2017-07-27 20:23:09

 

@Gilbaki Thx for the response again. I still can't figure out the physical aspect of it. How do I find this out? What do I need to look out for? Can you point me to any reading material on this. What is MAPS? Plz excuse as I'm still trying to figure things out. Can you tell me what is the best thing to do and how to time my move to the US for my 2 yr son. I was planning on going first setting things up and then getting him there. Is there a way to book an appointment with out insurance details so that he can come a month before the appointment? For a 2 yr old what can be done while waiting for an appointment in the US?
 

GilBaki 2017-07-27 22:41:47

 

1. https://www.tacanow.org/about-taca/ you can get lot of info from here... read about mentors too once you come here.. they can guide you. 

2. Get into wats app / telegram /facebook groups ... looking at the discussion you can find out where you are and can post questions and answers. 

3. Go for diet CF (no diary first then gluten)

4. Appointment without insurance is very expensive can range from 70-100$ /hour

5.MAPS is set of doctors who have good understanding of autism ...its listed in above link.



 

GilBaki 2017-07-28 21:17:06

 

Abcd0 text me ur num I'll add you in telegram group
 

Mouri 2017-07-28 22:58:14

 

Hi Hope57, I am going to a homeopathy doctor who is in my native, a small town not in a metro city. He is 84 yrs old, in that circle people know him. Here in Parentree I think there is a homeopathy thread and there they shared few doctors numbers too. You can check that out. Find some old doctor, and ask his patients how long they r coming to him or her etc. These good doctors never advertise.
 

Rami123 2017-08-03 18:12:59

 

Hi I am a mother of 4 year old mild autistic son living in USA who was diagnosed with autism at the age of 2.5 years. Now he is talking sentences, responding to name and much better than before in all other things with help of good ABA therapy and public school program. 

Whenever we come to India for vacation my kid has progressed well of course he progresses in USA too but India did give him a extra push as marriage time or function time lots of relatives will be there and I want to think about settling down in USA or come back to India. We don't have any parental support in India as both sides parents are Sick and not child playing type and so we only have to depend on few relatives and cousins living in the Bangalore  and neighbors and cooks and helpers for help in India. 

The insurance plan is good here we don't have to shell too much money and school district is also one of the best where i live in USA but not sure if I can match it up in India in Bangalore. Trying to find social groups here  in USA for peer interaction and also trying to move to my sisters city California for some family support. 

Please advise.


 


Rami123 2017-08-03 19:39:32

 

Hi I am a mother of 4 year old mild autistic son living in USA who was diagnosed with autism at the age of 2.5 years. Now he is talking sentences, responding to name and much better than before in all other things with help of good ABA therapy and public school program. 

Whenever we come to India for vacation my kid has progressed well of course he progresses in USA too but India did give him a extra push as marriage time or function time lots of relatives will be there and I want to think about settling down in USA or come back to India. We don't have any parental support in India as both sides parents are Sick and not child playing type and so we only have to depend on few relatives and cousins living in the Bangalore  and neighbors and cooks and helpers for help in India. 

The insurance plan is good here we don't have to shell too much money and school district is also one of the best where i live in USA but not sure if I can match it up in India in Bangalore. Trying to find social groups here  in USA for peer interaction and also trying to move to my sisters city California for some family support. 

Please advise.


 

duggi 2017-08-04 01:35:23

 

Hi Rami
After reading your post. I think we are sailing in the same boat. I stay in California my daughter is 3 year old. she is talking in words still waiting for full sentence. I want to know if you happen to hear about MAPS doc. if yes then what is your opinion.

 

duggi 2017-08-04 01:43:25

 

Hi Gilbaki
can u explain me more about this telegram group.and also can u add me in this group.
 

Rami123 2017-08-04 05:37:22

 

Hi duggi

I have not heard about MAPS but I live in Virginia in fairfax and fairfax schools are known for special education and my son is progressing well for what he started.  

So so that's why I don't know if I can expect the same in India but definitely the social life is great in India than here but I also don't know if my son can follow or survive in special education schools in Bangalore 
 

abcd0 2017-08-04 07:22:15

 

@Gilbaki Sorry for the delay in response. Is there an option to send u the Nbr over Pvt message?
 

GilBaki 2017-08-04 19:04:06

 

Telegram group is more like wats app .. install telegram and few groups are there with Indians all over the world having kids in spectrum. U can send your num and I can add you.
 

PavanS 2017-08-04 20:06:37

 

Hi..I am Pavan, my son is almost 3 years, Please add my number in the telegram group

+91-8297575960

 

hope57 2017-08-04 20:25:04

 

Hi..Can you please add my number in the telegram group..here is my number +91 7780619321..Thanks
 

duggi 2017-08-05 06:48:40

 

Hi can u please add my number in the telegram group. Here is my number +15106107192. Thankyou
 

 

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