New parents to Autism. Need your guidance

146 replies, Page 7

Itskb 2019-12-06 15:41:26

 

Hi. There is a WhatsApp group for parents of children with special needs. The support group helps members connect and share information, advice, tips, inspiration and education. Most of all, it helps them belong to a community that understand their needs and not feel at a loss. Because together, no one is alone. 
Pls connect to join and/or share forward.  Anyone who is differently abled or has a family member who is, is welcome.
 

PRS2019 2019-12-17 17:39:34

 

Hello, my son 2 yrs 7 month diagonesed with autosim (though we are still in process for severity) , would like join whatsApp group for oune Or any other helpful groups to sail through these days and see a light soon. Please help us with relevent information to start with., we are at present getting issues to get appointment for development analysis, thus be part of the group will definitely helpful. Kindky add 9850095099 & 7738863540.
 

grandma2014 2020-06-23 13:07:50

 

Anirban,

check with www.iiahp.com Chandigarh.
 


Akk88 2020-06-25 12:17:02

 

Hi Purovi16

Congratulations !! A very big step Can you let me know what is BMI and what you did. My son details below
Brief history of my son really confused as doctor did not give any diagonosis yet.
My son is now 2.5 year old and i started his aba from 2.1 month

His abilities

Excellent gross motor skill
Excellent pencil grip and hand eye cordination
excellent cognitivitie skill
excellent problem solving
very curious and well aware of surrounding
respond to name very well
has good memory learns fast
can say and know abc,colors,123 and few more words but not use them to communicate can only say when we ask and show whats this ?
can point to several things n a book
good at following 1 step instruction like give me,jump,clap keep,hi,bye
knows his body parts (4-5)
no sensory issue
no food issue
Can point to desired items (I have taught him to do so)
Can immitate well
Sleeps well

His disabilities
Does not communicate by saying things generally takes his own because he knows where it is,or pull me or point or whim by looking at the thing
Majorly not intrested in other kids play on his own(i have not put him on any school yet)
Eye contact is poor ,He can look into eyes properly but only when he wants to when something is intresting is there like rhymes ,songs etc
Hyperactive but can sit for an hour for activities (I usually take two sessions for him in morning and one in evening)
jumps and runs a lot

I am worried can anybody please suugest what could it be will he overcome his delays will he communicate with me someday ,will he be a normal boy.I love him so much,Even he loves me too,he always wanted me to be his side,Sorry for the long post 

Worried mom

 

Akk88 2020-06-25 12:30:21

 

Hi Purovi16

Congratulations !! A very big step Can you let me know what is BMI and what you did. My son details below
Brief history of my son really confused as doctor did not give any diagonosis yet.
My son is now 2.5 year old and i started his aba from 2.1 month

His abilities

Excellent gross motor skill
Excellent pencil grip and hand eye cordination
excellent cognitivitie skill
excellent problem solving
very curious and well aware of surrounding
respond to name very well
has good memory learns fast
can say and know abc,colors,123 and few more words but not use them to communicate can only say when we ask and show whats this ?
can point to several things n a book
good at following 1 step instruction like give me,jump,clap keep,hi,bye
knows his body parts (4-5)
no sensory issue
no food issue
Can point to desired items (I have taught him to do so)
Can immitate well
Sleeps well

His disabilities
Does not communicate by saying things generally takes his own because he knows where it is,or pull me or point or whim by looking at the thing
Majorly not intrested in other kids play on his own(i have not put him on any school yet)
Eye contact is poor ,He can look into eyes properly but only when he wants to when something is intresting is there like rhymes ,songs etc
Hyperactive but can sit for an hour for activities (I usually take two sessions for him in morning and one in evening)
jumps and runs a lot

I am worried can anybody please suugest what could it be will he overcome his delays will he communicate with me someday ,will he be a normal boy.I love him so much,Even he loves me too,he always wanted me to be his side,Sorry for the long post 

Worried mom

 

nirajAFather 2020-06-25 15:23:48

 

Hello, first great to hear that he has good motor skills, can communicate, talk clearly, surrounding awareness and most important can imitate and responds to name.
My experience with autistic kids including my own son when he was diagnosed 3.5 years back,  was that it took us lots of efforts to build his 
1. Eye Contact
2. Ability to imitate
3. Surrounding awareness.
4. Responding to his own name.

When he was coming out of autism, one of the first things he developed was pointing out the things he wants.  Before that, he actually used to pull us toward the thing or used to push towards the thing.

By description looks like a very normal child, but I am not a doctor to say anything here to or give any diagnosis.

Few of the simple things if you try it will help a lot:
1. Reduce or completely stop rhymes watching on mobile, TV etc. This is something that harms a lot, to any kids, whether autistic or nonautistic.
2. Start playing more interactive games with him, which involves lots of fun. Don't give much importance to school kind of things like learning alphabets or learning numbers.  Interactive playing is very important.
3. There are some videos on youtube that can give you some idea about how to play interactive games with kids uploaded by sonrise program guys. You can refer this playlist for lots of ideas from them about how to play interactive games : https://www.youtube.com/watch?v=WXGG6AME3Jo&list=PLERasAVrUVjdOc6Ha8vg3CREazL3QDLFp


I hope this will help you. By playing more interactive games his eye contact will improve.


 




 

Akk88 2020-06-26 08:11:06

 

Hi nirajAFather

Thank you so much for your support
 The link you gave is not working ,i will try to search for interactive games and play with him more.All these which i mentioned ,like immtation responding to name and instructions just came in last 5 months with regressive aba therapy and home training .
Before that he hardly utters a word and can not point, I home train him a lot. Now he is developing fast,listening and doing what asked to currently he is 2.5 can say about 10-15 words on showing and asking ,still he needs lot of work,I dont want him to put him on any medicine and want ton treat him naturally with therapies, and I am very hopeful he will do it,My next target in 6 months is to make him talk and play interactive games like catching a ball and improving eye contact,

He has a great memory so i am taking advantage if it
he sometimes tends to do repetative actions like spinning and placing things on table not in line though(like once a day for 2-3 sec) I even dont allow him to do that . If i allow him thiese behaviour will get strengthed ,and yes i have fully stopped his tv and cartoon

and I do see improvement even i say a huge improvement . I am praying to god its a long journey and I am determined i will cure my son In my opinion it will take me max 1 year to recover him quickly

 

 

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