New parents to Autism. Need your guidance

146 replies, Page 6

ThakurR 2017-12-30 06:39:16

 

Hello Chandigarh- You can reach out to me at 9620047363. We have almost healed our child from ASD with a lot of Bio medical interventions, HBOT, home and ABA Therapies and Chelation. Dr Neena Shilen in Cochin is a very good DAN specialist. You can reach her at 9446495650. She works in the Sunrise hospital in Cochin and is very good.

Protocol we followed for our child:


1)We started with a lot of occupational and speech therapy at home (limited sessions at theraphy centre)- speak as much as you can with you child2)Bio Medicines - Cod Lever oil (2-3 ml everyday), Primosa oil (500 mg- 2-3 capsules everyday for a 2.5 yrs old child); CoQ (1 tablet), GLA120 (1-2 tablets everyday); Creon1000 (1 tablet everyday)- You can get all these capsules in any medical store in India3)Within 3 months of Bio medicines, we saw speech coming in fro our kid an we continued to put extra effort to developing his focus levels through therapies (at home - speech, some education etc), We started Methyl B12 shots  Methyl B12 shots are vitamin B12 shots that we procure from the US (Process to buy it- Get the prescription for Methyl B12 from the any doctors in India,  Either Dr Praveen Saxena or Deepak Gupta and then register at Akhil AUtism Centre online (online registration ). Order online from Akhil AUtism . They will ask for the prescription on Methyl B12, share the online copy through email and they will procure the Methyl B12 shots from US and post it through Fedex to your address.4)Probiotics- Coconut kefir works wonders5)Once the gut is clean and the body detoxifies , we did  HBOT sessions (they were not very useful but every child had a different issue and it does help a lot of other children is what I understand). Remember that HBOT needs to be done only ONLY THE BODY is clean (the gut is clean , body is detoxified) which can happen once you do bio medicines and chelation etc 6) Along with Bio medicines, Methyl B12 , we are now additionally doing Chelation- Chelation is definitely helping us increase his cognition, his fine motor skills, awareness around socialization, better speech. Chelation can only be done once you check the toxicity level in the blood/urine/hair- Kids on the spectrum could have metal retention or toxicity in their bodies that avoid them to function appropriately. Chelation is a process of removing the toxic metals like lead, mercury , Aluminium etc from the child's body (many children on the spectrum are exposed to heavy metals and are not able to excrete it  naturally due to which chelation helps them bigtime). We did Chelation under Dr Neena Shilen and Dr Praveen Saxena (Gultathione , DMSA, Calcium EDTA). Please remember to get the followign tests done before you go to the doctor for Chelation:



2)Porphyrins test-Urine test to be done from Greater Plains Labs , US (Please go on Matritouch .com and order for the test online). OR Hair Metal test - Matritouch.com enables us to send the blood sample outside and get the results in 10 days.3)Copper Serum- Any labs- SRL labs do conduct these tests4)Aluminium Serum-SRL labs do conduct these tests5)Food Allergy profile- igg test- This can be ordered from GPL labs or  Matritouch .com

Additionally, we plan to also use DMSA chelation in the next few weeks knowing the kind of progress children make .Post multiple researches, we have got the reference of Dr Neena Shilon from Sunrise Hospital in Cochi who does proper DMSA chelation. 
Dr Neena Shilen- 9446495650
Hopefully, you find this useful.
 

ThakurR 2017-12-30 06:46:34

 

Protocol we followed for our child:


1)We started with a lot of occupational and speech therapy at home (limited sessions at theraphy centre)- speak as much as you can with you child2)Bio Medicines - Cod Lever oil (2-3 ml everyday), Primosa oil (500 mg- 2-3 capsules everyday for a 2.5 yrs old child); CoQ (1 tablet), GLA120 (1-2 tablets everyday); Creon1000 (1 tablet everyday)- You can get all these capsules in any medical store in India3)Within 3 months of Bio medicines, we saw speech coming in fro our kid an we continued to put extra effort to developing his focus levels through therapies (at home - speech, some education etc), We started Methyl B12 shots  Methyl B12 shots are vitamin B12 shots that we procure from the US (Process to buy it- Get the prescription for Methyl B12 from the any doctors in India,  Either Dr Praveen Saxena or Deepak Gupta and then register at Akhil AUtism Centre online (online registration ). Order online from Akhil AUtism . They will ask for the prescription on Methyl B12, share the online copy through email and they will procure the Methyl B12 shots from US and post it through Fedex to your address.4)Probiotics- Coconut kefir works wonders5)Once the gut is clean and the body detoxifies , we did  HBOT sessions (they were not very useful but every child had a different issue and it does help a lot of other children is what I understand). Remember that HBOT needs to be done only ONLY THE BODY is clean (the gut is clean , body is detoxified) which can happen once you do bio medicines and chelation etc 6) Along with Bio medicines, Methyl B12 , we are now additionally doing Chelation- Chelation is definitely helping us increase his cognition, his fine motor skills, awareness around socialization, better speech. Chelation can only be done once you check the toxicity level in the blood/urine/hair- Kids on the spectrum could have metal retention or toxicity in their bodies that avoid them to function appropriately. Chelation is a process of removing the toxic metals like lead, mercury , Aluminium etc from the child's body (many children on the spectrum are exposed to heavy metals and are not able to excrete it  naturally due to which chelation helps them bigtime). We did Chelation under Dr Neena Shilen and Dr Praveen Saxena (Gultathione , DMSA, Calcium EDTA). Please remember to get the followign tests done before you go to the doctor for Chelation:



2)Porphyrins test-Urine test to be done from Greater Plains Labs , US (Please go on Matritouch .com and order for the test online). OR Hair Metal test - Matritouch.com enables us to send the blood sample outside and get the results in 10 days.3)Copper Serum- Any labs- SRL labs do conduct these tests4)Aluminium Serum-SRL labs do conduct these tests5)Food Allergy profile- igg test- This can be ordered from GPL labs or  Matritouch .com

Additionally, we plan to also use DMSA chelation in the next few weeks knowing the kind of progress children make .Post multiple researches, we have got the reference of Dr Neena Shilon from Sunrise Hospital in Cochi who does proper DMSA chelation. 
Dr Neena Shilen- 9446495650
Hopefully, you find this useful.
 

Authelp 2017-12-30 12:29:03

 

Hello sir can i knw wat symptoma ur son had of asd
 


ThakurR 2017-12-30 14:14:49

 

Hyperactivity, toe walking, closing of ears, temper tantrums, meltdowns, sensory issues, no speech
 

habibmuhammad 2018-01-17 08:52:36

 

I think u can try, Homeopathic remedy Thuja 30c,one dose a day for a week And nat mur 30 c, one dose a day for a week. (Put 4 pills in a 500 ml bottle, and add water upto 1/2,then give 10 succussion to bottle, before giving to the child.-one dose is one teaspoon),store bottle is fridge. Do not give dose if you see aggravation ,wait and give it after it subsided,(may be a day or two) Qigong massage reduce tantrums and good for sleep. 15 minutes a day at home.Google to find more at. www.qsti.org Acetyl l carnitine for brain For speech, Creatine kre alkalyn and L carnosine and fishoil and cod liver oil(without mercury) for eye contact Triphala for constipation Trikatu for digestion Mentant ,Himalaya liv 52 Google on each ,and find proper dose. And sonrise technique at home(refer sonrise program on Google) And strict diet gfcf and only home made food with out additive Color and preservatives And Alot of patience and love for the child on spectrum. Always start slow with minimum dose ,one at a week and wait and have patience and add other. I do not have experience,I found it from googling Alot.Do your own research.
 

anirban01 2018-02-24 15:31:06

 

There are quite a few kids, especially those who have had regression into autism around 1 or 2 years, who have been fortunate enough to have biomedical protocol from a very early age and have now recovered or doing very well and near recovery. While therapies does help, I doubt of many cases where therapies alone have recovered kids from autism. Most mainstream doctors in India, including NIMHANS specialists are clueless of why autism happens and how our kids needs to be recovered and their bodies healed. I am saying all this from personal experience. My son diagnosed as MR at Apollo and ASD at NIMHANS at age 3, was non verbal, severe stimming, no eye contact, no social skills, is now out of the spectrum as per global specialist doctors. Though he isn't out of the woods yet, as there is not at par speech, and below par social skills, below average in studies. Therefore, we are continuing our struggle. His ATEC at 3 was 70 +, his ATEC now is 20. We don't do any therapies other than OT once a week.
 



Jinu123 2018-03-01 14:23:10

 

Hi, I m from Mumbai my 22 month old daughter is diagnosed with emerging autism...we have started the ot therapy can you please tell me wat an ot therapist does? My daughters therapist take a session of 30 minutes twice a week. She does some sensory activities and then some games like building blogs and putting cubes triangle in box and etc..are we going in a right direction..we have started therapy from last one month but we have seen improvement in her..she has now started speaking words like bye, mummy aapo( means give in Gujarati). But still her hyperactivity is not reduced when we go out.. plz help for any suggestions we are very confused..at times she corporate with therapist at times she doesnot
 

Jinu123 2018-03-01 18:05:39

 

Plz some body respond
 

Jinu123 2018-03-01 19:55:40

 

Hi wat is aba therapy
 

suku1985 2018-03-02 01:19:23

 

Each kid is different with progress. Good that your kid improving in 22 months. As you said, she speaks some words. Try to build communication with her even though she not responding. One day she will give you surprise. 


 

Jinu123 2018-03-02 20:06:33

 

She speaks words but they are related I mean she speaks randomly..I don't think she understands. She doesn't point at things..but she push us to that thing and tell us to give.. like if she wants water she will give me the bottle ..
 

anirban01 2018-03-04 13:54:09

 

You are lucky that you got diagnosis so early. Along with therapies, if you ask me, start biomedical ASAP. Take appointment from Dr. Shanta Venkat in Mumbai. She is a trained MAPS specialist from USA, one of the few who are there in India.
 

Authelp 2018-03-06 19:09:40

 

What abt deepak gupta delhi
 

146605 2018-03-07 11:55:23

 

Is any doctor available in Bangalore for Biomedical tests.
 

ThakurR 2018-03-07 22:13:19

 

Clearly not a great experience at all..Dr Shanta Venkat is way way better. She ensures she does not hold information at her side andb gives the entire protocol at one go.
 

ThakurR 2018-03-07 22:14:49

 

Please see my mail below..I have posted all details . We do not have a any Dan doctors in Bangalore. Please try Dr Shanta Venkat in Mumbai.happy to speak..u cud call me at 9620047363.
 

Param16 2019-10-28 18:13:59

 

My child is 3.8years ND diagnosed as mild autistic. I want to shift Chandigarh for his treatment,, plz someone suggest me some good speech ND occupation therapist. I shall b very much thanhkfull
 

Aari1 2019-11-01 14:13:30

 

Hi Aditi, Can I join your what's app group please?
 


bhavya1 2019-11-01 19:25:09

 

WhatsApp has a limitation of 250 members..all groups migrated to telegram app Btw what group you wanna join ?
 

SpecialMomCA 2019-11-05 01:25:30

 

Hi Thakur ji,

My son is diagnosed with ASD after his 4th birthday.
He speaks well, but we went for diagnosis because he started visual stimming 6 months ago.
Seeing objects from corners of eyes, it started and increased too much with in days.
He is in his own world sometimes, and very very less focus and attention.

If we involve he talks, but our major concerns are his attention, visual stimming, being in his world, not playing with other kids and Echolalia sometimes.

Can you please suggest which can help him based on your experience.

Thanks.
 

DrDiptanshuChNeuro 2019-11-07 10:57:30

 

HiI am Dr. Diptanshu Das, a paediatric neurologist from Kolkata. I have joined the forum just recently and came across your post (which is quite old). Nevertheless, should you need my assistance, do not hesitate to contact me. I can be reached on +91-9831086789 or at diptanshu.das@medicasynergie.in .
 

Itskb 2019-12-06 15:39:53

 

Hi. There is a WhatsApp group for parents of children with special needs. The support group helps members connect and share information, advice, tips, inspiration and education. Most of all, it helps them belong to a community that understand their needs and not feel at a loss. Because together, no one is alone. 
Pls connect to join and/or share forward.  Anyone who is differently abled or has a family member who is, is welcome.
 

 

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