Good to see your reply.
It really a soothing to know that the kid is improving. He is developing and growing every day. I just want to say that Well done MOM. No therapist can replace a MOM who is willing and is in charge. MOM is not a word its UNIVERSE.
Request you one thing that please now don€™t waste your time in ATEC scoring. Its purely a waste of time and efforts.
Also at this juncture dont leave his ABA classes. This will keep the kid in observant eyes. It will cost in monetary terms but bear it. ABA therapy and procedure will provide him the required confidence to face challenges in school life.
One thing is clear from your email that your kid has accepted you as the mentor parent. You are now the real GOD/Friend/Lead Buddy for him. He will do whatever you say and now will start questing you a lot. You have reached this position so early. But in any case don€™t leave him of his own. Always be in his company. Ensure that he always feels that he has a force behind him as you. He will WIN all battles. This is crucial time. You are his confidence, his belief, his strength. Same has happened in my case. My wife is the leading parent and I am his enjoying buddy (the friend-who makes him do whatever he want/enjoyment partner, partner in every crime) parent. He is comfortable with me but adores his mother. She is rigid many times and gets the work done. I already said above what a MOM can do!
Now one question connecting to the same. (This is in fact your second question) Please check that his Dad has earlier was busy in work/Laptop/Mobile/TV etc when he has come to him earlier. I suppose that the kid is reciprocating. It happens. Like Newtons third Law of action and reaction. He require time. He is doing a lot in less time and require attention. Pay attention at every step. Let him be confident. Always reply to his emotional and verbal needs. The kid will bloom.
Secondary his affection to Mixie is obvious. It€™s the affinity with the moving or sound making objects. Observe and tell wither he is able to hear loud music or high pitch sound.
Don€™t remove any thing. Don€™t change his world rather than make him adopt the real world. He will learn if you change his focus when he is very involved. Try it. You will succeeded. He has to overcome his affection/sensory issues (as said by qualified people) by using the same object not by avoiding them. Find a way to divert his attention from it. He is doing role playing and imitation. Its very good. Involve him. Every time you use mixie ask him to help. Make him a part of work. We have also involved our kid in lots of cooking activity. And the results are wonderful. Today he can teach a regular Bachelor how to prepare a dal and how to do a TADKA. This also made him acquainted with a lot of things.
These attachments will go and keep shifting. Keep the kid involve and never stop talking to him.
Just for your knowledge Justin Bieber came to India with his washing machine. He tours the world with his particular washing machine. No doctor comments on it. Please give some time and talking to the kid and all will become OK.
Your kid has shown remarkable results in very less time. But in any case don€™t loose your grip. Be a vigilant parent. At least till his early school days.
PS Please also read thread Travelling is the best therapy written by Panna. She talks about university of LIFE. Real life situations and overcoming it. Great efforts by her.
I understand your views a parent on ATEC (whatever to check). But its done thing. Today we know what needs to be done. You are handling the kid dayin-dayout. Just focus on the correction path. Also its never a short journey. Its not like some fever that we measure and prescribe the medicine. Now when we know that there is attention and stimuli is required for behaviour modification. That is all. Also why the score is important. Just to satisfy us mentally that the kid is out of ASD or whatever. Then we have to understand the definition of ASD/Autism again. Generally ASD or other NT conditions are not changed in months. And if the pattern of change is fast as months then probably misdiagnosis is there. Then whats the need for ATEC points. So be patience and just work with the kid.
ABA is good for a kid who is either diagnosed or misdiagnosed with ASD. In either case the kid will improve. For a misdiagnosed one it will be something like a attention via careful therapists. While for ASD labelled kids it€™s the only corrective hope. Continue ABA and you will yourself understand when to stop it. But don€™t be in hurry. My kid is still going for ABA and we feel to continue it for some more time. But the kid also goes to Montessori system school or pre-school.
We took a call to not put my kid in a senior school this year. Rather he is continuously going to pre-school system. His doctor and therapist have given an option that we can go for a formal school but we decided to continue with current setup where he is more focused on his speech part. Bigger school wont help us and we cant put that much pressure on school. Here we make a point to everyday interact with teachers about what new he has done or the teachers have tried. To a small school we can put pressure on school management to involve our kid in all social or group activities.
Now your question on some specialist Doctors curing ASD/Autism. A tricky and difficult one. But I will try to put forward my thoughts.
It again starts with our encounter with our kids diagnosis (or mis-diagnosis) with ASD. When I come to know about it my kids state/condition I also panicked like all parents do. But believed in second and third opinion, read more about it (not only on internet), visited institutions to interact with therapists. I learned and later expended more. You know that there are various system of medicine in India. These major system of medicine are as Allopathic (Morden), Ayurvedic, Unani, Siddha, Sowa-Rigpa (Tibetan), Homeopathy and Yoga and Naturopathy. Met with all specialists with intention to find out that my kid has some undiscoverable or shortcoming which the Morden System of Medicine doctors (Paediatrician, developmental Paediatrician , Neurologist, Paediatric Neurologist, Psychiatrist , Psychologist, Eye Specialist, E&T Specialist, Gastroenterologist, Occupational Therapist, Physiotherapist, Special Educator, Speech Therapist) were unable to find. Please also add Toxicologists as you mentioned about the suspect chemicals present in ASD kids body needs to be discovered to cure it. At this point just a question, we still have DDT present in our food chain. Has it effected or not. Or what about polluted drinking water. Just think but lets not deviate from the original question.
Out of the all of the specialist mentioned above, at a basic level if there is something (chemical or toxins) then the Paediatrician or developmental Paediatrician can generally get the symptoms. They study the same in MD course. If you do not believe then please check the course structure and contents for MD Paediatrics.
Apart from this if the Kids show specific symptoms in case they have any problems with food materials. Also the basic allergy tests advised by normal paediatrician also rule out or check the same. This is often seen in cases with kids who have allergy with food items and there hormonal levels got imbalanced due to it and thus they got diagnosed as ASD. They are generally corrected via medications and changed food.
So all these are clear cut established facts via a system of medicine.
But when it is told that there are specialist doctors who find out something in an ASD/Autism/PDD NOS kids which other equivalent qualified doctor cant then we have to talk to Noble Price Committee. They are Noble Price material. Even the doctors batch mates and professors can€™t understand his calibre. WOW. Just check the website of the concern doctor and you find a price tag for every activity he does.
Generally the medicines prescribed are something which are there for some months and then changed. And this process goes on. There are a lots of cases where these doctors are ineffective. I am based at Delhi and have met with kids parents who have taken treatment for years and didn€™t have an iota of benefit. I have seen the kids who didn€™t get any benefit even with many international specific medicine which is available with him only.
Please remember that the causes of Autism/ASD which are still a mystery. There are 3 basic tests (MRI Brain, BERA & EEG) which helps to point at something. But even in Morden System of Medicine the Neurologist asks for these tests and Psychiatrist/Psychologist rule out these. A contradiction.
So the answer is these doctors are like GODs for some they help and to some they don€™t.
But ABA, OT, Speech Therapy helps kids to develop by there own. So lets have a long but sure way. As far as my knowledge goes there is no medicine for ASD/Autism/PDD NOS. It is only treated by therapies. And if any kid get benefited by some medicine or doctor then just continue. Its what we are looking for. You must interact with the doctor. There is no harm in getting some advice.
Here are few common threads and links which can be helpful, most helpful will be joining the Bangalore parents group in Wats app(Admin will verify to avoid spam), I have posted the threads to those posts with a hope it gonna help someone. Never join any centre until you had a discussion in the group or had a word with an expert. You can hear the real experience from the parents.
Most of the parents from Bangalore did food allergy tests for their kid to identify allergy tolerance towards a particular food. It costs around 15k to 25k depends upon the level. 80% who taking their kids for ABA therapy tried and still trying glutin free diet as per the test result.
Join Wats app links
Like Facebook groups
https://www.facebook.com/groups/forumforautsim/ (Created by parents)
Clear your doubts at
Sorry for late response. I missed this post. Seen it lately.
If you have gone to Dew Drops and BMI then possibilities are that very less therapist people/centres are left here in Delhi/NCR. In Dew Drops network there are certain centres where they have really good therapists. They are the largest business chain for special kids here in Delhi /NCR. I presume that you have visited Noida Centre.
But I feel that there are still some centres/persons where we can have some methodically planned system for kids (especially for ABA). This is purely my understanding or observation. I dont write names against or for here. Thats my personal opinion. But surely there are some therapist who are working sincerely. We are already connected here, drop me a message and we can discuss the required.
I am trying to understand the problem of my 2 year daughter. We have seen a number of doctors since past one month but unfortunately haven€™t got any proper diagnosis for her. Some of them say she is in ASD spectrum.
As per our understanding, kids with ASD spectrum must have stereotypical/repetitive/stimming behaviors which she rarely does, hence, we would like to request you if from your experience with ASD kids, could you please confirm her working diagnosis (if she is in ASD spectrum or she has only language disorder with behaviors inhibition/phobias
Major area of problem:
No verbal language: does not speak any meaning full word at 2 year, no expressive language but receptive language ok
impaired Non-verbal language: Does not point from index finger, prefer hand leading, only recently started gestures (hello, bye, clapping etc)
she is social at home (play ringa ringa, peek a boo, hide and seek etc) however, in social situations she is different person.
Very fearful in social/new situations
She does not like to greet/see any stranger, cry inconsolably if any stranger try to touch her/say hello or try to communicate with her anyways.
Anxious in new places/people/situations
Does not like if we talk to strangers or any stranger visit our house
Phobia of narrow places
Phobia of torch/laser light
With careful observation we realized that it is not social deficit however, she does not like to play because of fear. However, once she is settled she starts playing with other kinds/adults (she took an almost a month in day care center to start playing with others). However, now also, she plays with one kid and caregiver.
Toe walking almost all time ever since she learned walking
Very clingy with family members especially mother.
Some restricted interests and sometimes line-up objects however not obsessive toward them. If we distract her, she stops that activity easily. Likes going to only a one particular swing out of 10 in a park nearby. Wants to watch/listen only one type of cartoon poems
Not easy going since birth, Irritated very easily
She started social smile when she was three months old. Now also she exchanges smiles with her parents and grandparents and some known people (2-3).
She invites us , her grandparents, our maid to play with her (games like ringa ringa rosie). Enjoy hide and seek/ peek aboo games.
Normal eye contact with family members
Eats almost every kind of food
Wears almost every kind of texture
Not afraid of sounds, noises, heights, water, speed, swings etc
No unnecessary body movements
Learns to play with toys appropriately
Receptive language seems ok and understand tone of voice also
She follow simple commands like, sit, stand, give me, eat, pass a toy
She has started imitating few actions since last fifteen days (finger plays)
She has started responding to her name (5 out of 10 calls)
No stereotypical behavior or stimming
No major hyper/hyposensitivity issue/ tantrums/metdowns
Recognize us very well and feel affectionate with us. Hugs family members. Has stranger and separation anxiety.
No major sleep/GI issues
Looks at what we point to. Looks at us while doing some new activity like finger plays. Attract our attention.
Sorry for long post however, we would be highly thankful if anyone can provide their comments is she is in spectrum and the typical symptoms of ASD are not visible due to her small age or she is not is spectrum and has other issues.
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