MB12 shots for autism treatment

53 replies, Page 1

rkrishna 2013-07-12 22:48:35

 

Hi,

 I heard about using Methyl B12 shots for treating autism. Just want to know if anyone tried this and if yes, Please share your experience. I have 4 year old son on autism spectrum. Is this treatment suitable for all autistic kids? do we need to check for Vitamin B12 deficiency first before going for this treatment? Has anyone found success with this? where can we get this treatment (in Hyderabad)? how long we need to continue this? how long will it take to see the results? Is it completely safe? which form of medication is best? Oral drops or injections or some other type? Is it OK to continue other medication like homeopathy in parallel during this treatment? Please let me know.

 Thanks in advance,Rama

zumbaleena 2013-07-13 04:22:50

 

yes...they are good. mb12 is the natural detox system for a typical body. due to absence of mb12 ...there is increased oxidative stress and heavy metals are not detoxed properly from the body. you can either speak to dr Praveen Saxena in Hyderabad or Dr Deepak Gupta or Dr Arun Mukherjee in Delhi. They will give you prescriptions for mb12.

 

I have been using them for over 6 months on my daughter and she has gone from single words onto sentences.

 

 Former member 2013-07-13 12:14:20

 

 @rkrishna,  my daughter didn't derive much benefit from MB12 in area of speech none in receptive and very little in expressive speech, but it improved socialisation.

Improvement with MB12 varies both in area of improvement and degree of improvement,

i have been using MB12 with my DD since past 10 months and definitely there is improvement, but my DD has not benefitted with it up to the degree we had expected, and definitely not in area of speech where we had set our expectations most. We tried to believe that there is improvement in speech too but we couldn't deceive ourselves for long, now i know the specific area where it helped.

And some children whom i know have not improved at all with MB12 and one displayed too much of side effects that it had to be discontinued.

So you MUST try it, and then it depends on luck that whether your child shows improvement with this (in many cases improvement occurs) and if it occurs then up to what degree.

 

 Former member 2013-07-13 12:27:42

 

 Vit. B12 is available in 2 forms cyanocobalamine and methylcobalamine, 

it is methylcobalamine which is used by DAN docs,

methylcobalamine ijections are available in india at very cheap price, so when u get prescription from any doctor for this u should ask whether u have to purchase very costly ones only (compounded by foriegn pharmacies) or indian ones can do.

(the difference in cost is very high 10,000 rs for foriegn ones and and 100 rs for indian ones)

 


zumbaleena 2013-07-13 15:29:16

 

 Rh - pls guide me on the Indian mb12 injections. Where do u get them from? Okayed by dr gupta?

 

 Former member 2013-07-13 19:17:59

 

 dear zumbaleena, i have not taken consultation from Dr. Gupta since more then 1 year, so u will have to get it okayed by him by asking to him yourself.

 

zumbaleena 2013-07-13 20:40:02

 

 Ok but where in India are mb12 injections available?

 

 Former member 2013-07-13 21:07:21

 

 at any good medical store, merkyry alena, genesis india, atoz pharma and other ones are making this. cost starts from 16 rupees.

 


zumbaleena 2013-07-14 05:14:40

 

 I found out the reason why us compounded pharmacy ones are better for our kids. The ones in india are not usable as their strength is not right I.e. they are not 25 mg per ml....hence they are very dilute. You would hv to inject a lot more and cos of less viscosity it would leach out of the fatty tissue much faster. So you will need to give maybe, 3-4 shots per day.

having said that, india is great to purchase anti fungal s, anti bacterial s and leucovorin

 

 Former member 2013-07-14 13:32:34

 

 indian ijections are not meant to be given in subcutaneous tissue, they are meant to be given i.v. or i.m.

there is difference in bioavailability of drug via various routes

i.m. drug availability is higher then subcutaneous, the dose 64.5 mcg/kg has been calculated for subcutaneous route by respected Dr. Neubrander

so if a person opts for indian injections, the dose/ duration between 2 doses etc. will be different 

 

 

rkrishna 2013-07-14 15:23:45

 

 Thank you so much for quick and detailed response. Could you please provide contact number for Praveen Saxena in Hyderabad if you have it? 

Currently I am following GFCF diet and homeopathy for my son. Please let me know if I need to discontinue homeopathy while taking this treatment. 

Rama

 

zumbaleena 2013-07-14 15:34:58

 

 Precisely my point rh....the injections available in india cannot be given to our kids on a daily basis. Who will do an IM or IV daily twice a day?

my friend tried it on her severely affected son and there was so much of resistance and anger. And also efficacy of mb12 is highly reduced when given IM. Best is subcutaneous as per Dr Neubrander.

rama...you go see Dr Praveen Saxena for a consult. I do not know him personally but recommended him cos he followd the DAN protocol. The 2 other doctors I have personal experience of and can recommend them more strongly. They are also....the best....acc to me...in india. If you can afford to fly to states, you should eventually go see dr Rossignol.

otherwise go see dr Saxena and for safety do a Skype consult with any of the other 2 docs. I know of dr PRAVEEN through some friends and also cos he is actively part of an autism hour by AAF foundation. He does do a lot of chelation though. 

Yes, in my opinion, if you start

 

zumbaleena 2013-07-14 15:36:54

 

 Biomed, homeopathy should be discontinued. If homeopathy is the route you wish to take....you should either take classical homeopathy route or CEASE.....although personally I have 0 belief in homeopathy.

http://www.healthyheart.in/

 

rkrishna 2013-07-14 16:23:47

 

 Just found the doctor Praveen Saxena's number from this website http://www.healthyheart.in/

It seems he followed Chelation therapy for his autistic son (found in this website) and I read somewhere that it is very risky procedure and may cause death if not done properly. 

Will contact him for MB12 injections. thanks once again.

Rama

 

 Former member 2013-07-14 17:35:29

 

 @dear zumbaleena, use of methylcobalamine as a neuroprotective agent is not new, i will post some details later with links

@RAMA-- oh, i didn't know that dr pravin kumar saxena's son is autistic, after your post i read about him in detail on his website, now i can fully understand why he got attracted towards alternative medicine , DAN etc (while originally being a radiologist) and i can really empathise with him

 

zumbaleena 2013-07-14 19:02:48

 

 Chelation does not cause death. I hv tried iv chelation for my 3 yr old. She was perfectly fine. However if you are not sure...you can try Andy cutler protocol....but it may take you years. If you want faster results, you can get iv chelation done in india itself. However you will have to be under a USA doctor for the same.

 

rkrishna 2013-07-15 20:48:41

 

 Thanks for your replies. I don't want to digress from the main topic of this thread, but just want to share this info I found before on wiki about Chelation therapy. As per this article, it is dangerous if not done appropriately.

http://en.wikipedia.org/wiki/Chelation_therapy

"Chelation therapy can be hazardous when used inappropriately. In August 2005, chelation therapy conducted by an ACAM member killed a 5-year-old boy with autism;[17] a 3-year-old nonautistic girl died in February 2005, and a nonautistic adult died in August 2003. These deaths were due to cardiac arrest caused by hypocalcemia during chelation therapy. In two of the cases hypocalcemia appears to have been caused by the administration of Na2EDTA (Disodium EDTA) and in the third case the type of EDTA was unknown.[47] Only the 3-year-old girl had been medically assessed and found to have an elevated blood lead level and resulting low iron levels and anemia, a proper medical cause for chelation therapy to be conducted.[48] According to protocol, EDTA should not be used in the treatment of children.[49] More than 30 deaths have been recorded in association with IV-administered disodium EDTA since the 1970s.[17]"

Rama

 

zumbaleena 2013-07-15 20:54:54

 

rama - dear rama - by the above definition and logic... "chelation can be hazardous when used inappropriately."

That is why u need a good doc under whom you do chelation. by the above logic, absolutely anything can be fatal if not done appropriately...it includes driving, shaving, swimming...

hope u see my point. it is not a life threatening condition really and AC protocol is so safe....hundreds and thousands of autism adults and parents do it themselves.

 

prathibasankar 2013-08-06 12:55:28

 

My son is in MB12 shot for past 1 month.We are giving him 3 days once.He is improving a lot.His speech is much better.His attention span and behaviour has increased dramatically.....

Do any one know how log do we need to give this shots????

 

mum2utir 2013-08-06 14:24:09

 

 


prathibasankar 2013-08-07 04:34:46

 

Thank you verymuch for your Reply....

 

PritiGlo 2014-03-15 22:43:51

 

Am wondering then how one in India can source the US made MB12 sub-cut injections?? Anyone with info on that?
 

abhisheksy 2014-03-18 23:37:37

 

Go to akhil autism foundation Mumbai. They will arrange it for u
 

smika 2014-03-19 00:51:52

 

hi

the shots should be given min 6 months and can continue till you get the response may be for 2 -3 yrs that's what dr Newbrander say.

 

gaurav1304 2014-05-29 23:54:23

 

Go to akhil autism foundation Mumbai. They will arrange it for u

abhisheksy: Thanks for this valuable information. Have you used their services? Do they just provide you the prescription or manage the delivery all the way to your home? If latter case, do you know if parents have choice of pharmacy? 
 

abhisheksy 2014-05-30 14:44:47

 

@ Gaurav 1304 no i have not used their services. they will deliver you on your mail address.whether you have decided to give your child mb12 shots?
 

gaurav1304 2014-05-30 17:10:29

 

Thanks abhisheksy. Yes we will have decided to move ahead with MB12 shots.
 

gaurav1304 2014-06-19 16:38:12

 

OK, I just received our first MB12 consignment from Hopewell Pharmacy USA and I just want to document the process that I followed for benefit of community.
1) Go to Akhil Autism Foundation (AAF) and become a member (details in http://www.akhilautismfoundation.org/product.php?cid=184&catname=Member%20Benefits)
2) Get a MB12 prescription from a doctor. There are certain DNA's that are affiliated with AAF (Deepak Gupta, Praveen etc) and will write the prescription in accordance with the format they need. If your doctor is not affiliated with them, you can obtain the format from AAF and request your local doctor to write the prescription in that format.
3) Once you have the prescription, you can send the scanned copy to AAF and they will forward it to Hopewell Pharmacy and from there on you can communicate directly with Hopewell Pharmacy.
4) As a policy the pharmacy will only send 1 month of supply. Total costs is $100 (50 for injections and 50 for shipment). Customs will also charge some amount, they charged me ~1200Rs (I have not yet calculated how they arrived at this figure, will do when I have spare time). It reached in my hands in 8 days, could have been faster but there was a lot of confusion around what exact documents needed from me as a KYC.

 

 

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